The Silver Lining

The silver lining is that I have truly discovered that I have the most wonderful and compassionate boss EVER. I emailed her last night to give her the heads up on what was going on and that I would need some time off. I had planned on going into work today (I have burned up all of my earned time as of late, so any time I take off would be without pay) but taking the bulk of time off next week. This is her response to my email:

• I feel very sad for you. Your heart is breaking. Words won't comfort.
  I wish you could go to a place to be with women where they would surround you, and attend to you, and hold you, and let you be as raw as you need to be. We would do that here if we could, but we can't, or we can, but only intermittently, moments instead of hours. I fear the reality of what is going on in the external environment will crash into what is going on internally; physically, emotionally, and spiritually for you. I don't want where you are and what you are called to do to create more pain for you in this process. I think you should take care of yourself and think about being away from here now, not next week, but now. This may not be the best place for you to be, in fact, it may be harmful to your vulnerable heart. You are brave. You are strong, but perhaps not that strong. Who could be?
  I trust you to make the decisions that best serve you. I will honor whatever you decide is best and right for you. You are a wonderful nurse, and we appreciate your work here- but not if comes at too great a cost to you. If on the other hand, you will find solace in the rythym of the work, the never-ending cycle, the company of women engaged in carinig for women- then of course, you should come. Only you know.
  I am so very sorry. all my best to you. k

She ended up calling me later in the evening to "warn" me about a fellow co-worker who just announced her pregnancy and people have been talking about it. She didn't want me to walk in and be surprised by this news. In the end, I decided to take today off. I didn't sleep more than about 3 hours last night and yesterday I hurt my back and have not really been able to stand up straight. As it turns out I believe it was a good idea all around, shortly after I woke up I noticed the faintest of spotting, so I think that this pregnancy is declaring itself on its own. I took the progesterone last night, and originally had planned on taking it again today and repeat one more beta tomorrow, but now I truly feel like this is the end. I checked my work email this morning and this is another email from the clinical educator, not really a supervisor, but she has known pretty much every step of my journey.

• I'm so sorry for your loss. While I want to see you and hold you and cry with you, you can know my heart and thoughts are with you now and through the day. I'm glad you chose to stay home where you have more contol over your environment. Please let us know if we can do anything for you. Thank you for letting me journey with you.

I couldn't ask to have a more supportive work environment, I am blessed in that regard. So now I guess I just wait. We are planning on going out of town this weekend, it is my niece's birthday and we have been organizing this for quite some time. I'll call this the clinic this morning to see if there is any reason I shouldn't go. My family knows what is happening and they will all be supportive if I need time just to hang out in the corner. I'll have the next 3 days to myself and any longer than that and I may go batty.

Nothin' good

Today's ultrasound was dismal, although we are not totally out of the game...yet. Gestational sac was seen, but no yolk sac. The gestational sac was not "plump", so the RE said she was not optimistic about the outcome. Of course there is still that miserable thin shred of possibility that things could turn around next week, so for the moment we are hanging on. I got the oh too familiar "I'm so sorry" hugs on our way out of the ultrasound room. It appears that although this cycle is not officially over, hope is gone from a medical stand point. We head over to the conference room to have a little more in depth conversation with the RE now that I am clothed and without a probe up my chickie. She is on vacation next week so she will not be able to follow up personally with me and she wanted to go over some possible scenarios. She is amazing. First off she asked who I wanted to have the appointment with in her absence, which I thought was very sensitive. Then we got down to brass tacks. If this is indeed a nonviable pregnancy, then she doesn't feel like I need to have a D&C, especially given how small the gestational sac is, so the next step could possibly include misoprostol to induce miscarrying the "products of conception". Anyone have any experience they would like to share here? Is this painful? Is it awful? I'm anticipating needing to miss a day's work or so.

I guess I shouldn't get too far ahead of myself, but this is where I feel we are heading. I am also trying to wrap my head around doing another cycle. Because of my age I have always felt like I need to press full steam ahead...I'm not getting any younger after all. The RE did say that she would be ok with a 2 month break for me, but not 6. Maybe that would be just enough time to feel a little more normal, a little less hormonal and perhaps, dare I say it, a little more in shape.

In the mean time, another beta tomorrow. If has plateaued or dropped, then that indicates things are going south. If it continues to rise, then it could mean continued growth of placental tissue, but not embryonic...so that really doesn't mean anything.

I'm working really hard at trying to not feel anything. I don't want to give up totally, but I don't want to have false hope either. I wish I could just find a state of numbness and stay there for at least a week or so. Boy, do I want a drink!!

More Beta news

I'm not even sure where to start. Yesterday would have been my due date from IVF#1/miscarriage. I was sad, and funky, but was relieved to have some good news with my last beta and a smidgen of hope.

Today I was called in to work and I thought "well, this will be good, I will work today and all weekend and it will keep my mind off the impending ultrasound on Monday". I've been having some pregnancy symptoms and was expecting to have a nice jump today. The nurse on Wednesday said she was hoping the beta would be in the 1,000 range. Today's beta is...drum roll please.....874. Fuck! Now it has done it's 66% rise in 48, so officially things are still okay. But the nurse also said that for as far along as I am, 23dpo, she would expect the number to be higher. And then....I lost it. I went into 3 separate fits of uncontrollable crying while trying to hide myself away from my co-workers. I'm getting the double whammy of reliving the miscarriage as well as this freakin' back and forth with the betas. I am trying to hang on to the idea that 1/3 of women don't have a typical rises in their betas, and I now wonder what happens to the betas to those fertiles that don't have all of this lab work. I don't think I ever had a beta with Z.

Anyway, I was able to leave work...well I HAD to leave work, they really didn't have a choice. I would have been circulating and recovering a c-section which means I would have been one on one with this cute little fertile intact family. The idea of having to handle the baby was enough to send me into a small panic attack. So here I am at home, trying to find some sanity so that I can go back in to work tomorrow....and the next day, and not lose my ever lovin' mind.

Just a quick post...beta yesterday was 503, which more than doubled. Still extremely cautious, but feeling a little less insane. One more beta tomorrow, then ultrasound on Monday.

Thank you everyone for your encouraging words. I'm so behind on my commenting....part of my grand effort to keep myself out of the house and very busy so I don't have time to mope. I've also been on call for the last couple of weeks, which is good money, but lots of extra time at work. I'll catch up soon.

...and the roller coaster starts to climb.....

I called my IVF nurse on Saturday and talked with her a little more about my third beta. I didn't think that I could wait until Monday and asked if it was okay if I had it drawn on Sunday. She said "sure" and that she understood that the waiting can be torture. I was relieved that I would not have to wait....but then I started thinking.... I would be at work on Sunday and if it was bad, which is what I was expecting, then I don't think that emotionally I would have been able to stay at work. As it turns out, Sunday was a mad house, partly because a couple of nurses called out sick, so it would not have been good to risk it by having the beta and then be miserable at work, surrounded by babies. So I decided to do the beta on Monday. Right after I got the results of beta #3, I thought "I just can't do this again". In an effort to start formulating my next plan, I took a look at job postings in other departments and other hospitals. I also did some research on adoption (which was terribly depressing) and finally I started looking into a Master's in Nursing Informatics. Then I thought about when I would go out and get good and drunk and color my hair (my mousy brown and grey roots are tragic).

Yesterday, I met a friend of mine who has also had fertility issues and some pretty horrific pregnancy related losses. Anyway, she has been doing IUIs over the last few months and she had her last IUI 2 days after my retrieval. (Can you see where this is going?) Well she is pregnant and she had to have her second beta drawn on Monday as well. We decided to make a day of it to take our minds off waiting around for the phone call. We went to the hospital, then lunch, then shopping. On our way home the clinic called. My beta is 194. I was in shock...it is still not where they would like it to be (they wanted it around 216), but they are encouraged. In a daze I heard her saying things like "we are optimistic" "there is reason for concern" "we are just going with it" and my personal favorite: "one third of all betas don't have the rise they expect, and everything turns out fine". It was the most bizarre feeling to be sitting there, not happy, not sad, just surprised. I have learned to live my life in 48 to 72 hour increments...and I think that I am doing fairly well. I'm trying to keep myself real busy, lots of activities planned on my days off. My ultrasound is scheduled for next Monday and the nurse said to keep the appointment...at least for now. My next beta is tomorrow morning...stay tuned.

Incidentally, my friend's beta was over 700.

the pain of waiting *update*

Trying my damnedest to live one day at a time. Last beta (on Wed) was 62. Of course I looked this up myself, so I didn't have he benefit of the IVF nurse to ask questions right away. During my last positive cycle my second beta was 97...so I panicked. After fretting about it for awhile, I decided to call the nurse. She was pleased with the number. She said they were looking for it to go up by 66% and since mine more than doubled, it was up by over 100%. I've had some pretty intense cramping the last couple of days which is freaking me out. I've been obsessed with my b.oobs, I can't tell if I am getting used to them or if they have deflated. It is an effort not to feel myself up at work to check 'em out.

I'm about to leave the house for beta #3. Unfortunately I have to have this lab work done at the local hospital, so I won't be able to look up my results...I'll have to do this the old fashioned way and wait for the nurse to call me! I'll post an update when I have it.

*update*
Isn't it amazing how one little phone call can send you into a tailspin? Beta #3 was 80...not good. They wanted it to be over 102. The nurse said "don't lose all hope"...I'm not sure that is possible. She said she has seen all sorts of different things happen with the numbers, but I am not optimistic. I am to continue with my progesterone and next beta will be on Monday. I'm devastated....can't stop crying. I just don't know if I can do this all over again.

Did you miss me?

Did you know I was gone? In a grand effort to force the time between transfer and beta to go much much faster, I have stayed away from blogs. I went to my brother's for a short visit, cleaned out the closets in my house...you know just stuff to keep my mind from racing.

So here is a recap: We did a 5dt of 2 blasts. Everyone said it was a great report. After 10 out of 10 eggs fertilized, one arrested and one fragmented. So going into the the transfer there were 6 still growing for potential freeze. 2 actually made it freeze. So overall I feel like this was a good "batch". After looking up the grade of blasts that they transferred (one was a 4BB and the other was a 1BB), I decided that they are just middle of the road quality blasts. Wish there was an "A" in there somewhere, but I am 40 after all. We now have 4 total in the freezer. Although according to the nurse practitioner, we should do as many fresh cycles while I'm on the younger side vs an FET...but lets jump off that bridge when we get there.

My beta was yesterday. I had a good idea of what the result was going to be before I did the test. I've had some heartburn, my boobs are huge and sore......my beta was 29! My clinic does a very early beta at 7dp5dt so the number doesn't sound great compared to the initial betas I see on other blogs, but it is a BFP and I'll take it!! They are supposed to freeze this 1st specimen and not run it until the second one is drawn 2 days later so they can evaluate doubling time...but this lab always runs it the same day. Because my beta is so early, I don't usually have to fight the urge to POAS, but I do cheat a little and look up my results in the computer before my clinic calls. By the time the IVF nurse calls to congratulate me, I've already called C and told him the news. Last night I did contemplate POAS, just so I could see the lines...how crazy is that?

I am taking this one step at a time. I am happy, but not ecstatic. I am hopeful, but realistic. I am trying desperately not to look too far ahead, but yesterday I had a little daydream about my daughter (who will be 5 this summer) rubbing my belly and feeling the baby move.

My next challenge is to stay in the moment, and only look as far ahead as the next test. Fortunately at this stage of the game, the next step is usually only at the most a week away. My next beta is tomorrow.